Normal

Ok so here I am... 6 months after my last blog, with so much to tell you all but not a lot to say, make sense? I thought not!

So what have I been up to? Good question, now where to start. Firstly the reason I am writing this blog is because I have been told off by numerous people that I don't update anymore and the last blog I wrote wasn't exactly a happy one (the title being "I didn't make it" - I hope none of you thought I had popped my clogs!) and secondly my English has gotten worse since I stopped. So here is my attempt at trying to keep this blogging a regular thing... small and short updates are the way forward I think!

So why so long since I updated, I guess I don't think people will find me that interesting anymore? I do normal everyday things now? Theres a lot less drama in my life (which is a good thing, believe me.) I guess I feel more normal, normal life has taken over and I don't feel the need to shout about it on here, because whats happening to me is just that... normal, nothing interesting, nothing out of the ordinary... just normal, I'm not complaining, I like normal!

A few high points of the last 6 months...

The main one is I moved into my own place in August! My family have been a huge support to me on this one, I now live 5ish minutes away from my parents in a 3rd floor 2 bedroom flat! I have loved making it my own, choosing the furniture, buying useless ornaments (that just look pretty) and having my own space!? Just a normal 23 year old thing to do!

I had a fab holiday abroad in Malta in July with my parents, brother, sister in law and niece. (The first since my transplant) I swam with dolphins, went canoeing, jet skiing and sampled some lovely Maltease cocktails! Just a normal holiday!

I am going to be an Auntie again! My nephew is due this month and I really can't wait! I love the smell of little babies, giving them bottles and rocking them to sleep, so much fun! A normal occasion to look forward to.

I've celebrated being another year older (probably not wiser) and another year with my kidney (last week).

I've had many drunken, happy and normal nights out with the girls!

I went for my annual review at the hospital last week, I had the best blood results I have ever had, my creatinine being 90 (in a healthy person this would be 80) and when I was on dialysis it was 1654! My creatinine clearance was 106, my kindey is clearing 106mls every minute... effectively meaning my kidney is working at 106% (anything above 50 would be acceptable)!

I'm loving my work, my role as a trustee for Live Life Then Give Life, my friends and my family.

I'm loving the fact that I am normal, I can write about normal everyday mundane things that everyone else does but this time 2 years ago I only dreamed of doing. I know that there are people out there that don't feel "normal" a lot of them being my friends who are on the transplant list, I also know only to well that none of the above (normal) things would have been posible if it wasn't for my donor and the gift they gave me.

So thats me, Holly, 24 years old, a nursery nurse who lives on her own (with 2 pet hamsters) who is a trustee for Live Life Then Give Life, has had a kidney transplant but is just normal, and living a very normal life and loving it!

xxx

I didn't make it...

Firstly apologies for not updating before now (I have a few good reasons) I have done a couple of guest blogs over on Rachy's blog and I am also on the Live Life Then Give Life blogging team now so check that out.

The main reason I haven't been around is... that I didn't make the 2 year mark without being admitted to hospital, this was an aim of mine but oh well... when needs must.

I thought I had a tummy bug, had the usual D and V that comes with it but I also had a sore chest (which I presumed was from coughing and retching, how wrong was I?). This was Friday the 16th and I spent all day in bed, running an impressive temperature of 39.8 at one point, I still insisted on keeping my duvet over me because I was cold (not very sensible). I also insisted on not going to hospital and that I would be fine the next day, which again I was wrong about.

I felt weak and wobbly on my feet, had dizzy spells and constant sickness (I missed 2 doses of my anti rejection drugs, which worried me), finally I gave in and told my Mum to ring the Royal Liverpool hospital transplant ward. The ward suggested I go to my local A and E or their A and E, I would have rather gone to theirs but there was no way that I could manage the 30minute car journey so instead it was off to Warrington. I ordered (well asked politely) my Mum to wash and dry my hair for me as I was in no doubt that they would keep me in, this involved me getting very out of breath, dizzy and faint. (The things us girls do hey)

I made it to the hospital without being sick in the car but spent my hour wait outside the department sat in a wheelchair throwing up in a bucket (so very attractive). Flashbacks from my last time in A and E came over me, this was in 2005 when I was first diagnosed and appeared with exactly the same symptoms. I was probably more worried than I let on but I knew that I was finally in the right place. I was eventually taken through to majors, with my obs being done, bloods taken and a cannula put in (all echoing the exact same routine that had taken place in 2005). I was given a chest x ray, saline drip, paracetamol and hydrocortazone, which had an effect on me within the hour, I was very impressed and felt relieved.

The chest x ray results came back and I was told I had a bad chest infection, so my self diagnosis of a pulled muscle was wrong then... later I found out that it was actually pneumonia I had! To say I was surprised was an understatement, I'd had an injection against it, always presumed you had to be cold to catch it (don't ask me why) and always thought it was more an old peoples illness?!

I was put on IV antibiotics and kept in Warrington Hospital for 2 nights. I was all ready to be discharged when I was told to keep my outpatients appointment at the Royal Liverpool, so me and my Mum (with me still feeling very rough) drove on over. My transplant consultant took one look at me and decided to admit me there and then! I only stayed in for one night and am now back at home on Oral Augmentin antibiotics, which seem to be doing the trick!

So all in all a very eventful few weeks, full of events I don't want to repeat any time soon! I am on the mend, although I still seem to be feeling a bit of chest pain and I'm still getting tired easily. I was signed off work for 2 weeks (one more week to go) and I am booked in for another x ray on Thursday which will hopefully show things clearing up.

It just goes to show how fragile health can be, it did bring memories flooding back and thats what scared me. I was probably beginning to get comfortable with how my health was going and taking it for granted so it really knocked me for 6 when I was housebound for a week... it was like life on dialysis.

I know its nothing compared to what some people (who are awaiting transplants) have been through or are going through at this very minute but It's given be a huge wake up call that nothing is written in stone and health should never be taken for granted....

I haven't fallen off the face of the earth...

As the title suggests, I am still here (you don't get rid of me that easily)

If I am not updating its because I am having too much fun for my own good! I have done loads of exciting things over the past few weeks that each deserve their own blog, but I just don't have time. So here is a quick run down!

• I went to the x factor meet and greet... met them all, loved Jedward and got some fab pics (if you are on facebook you will have already seen them)
• I went to London for 5 days ON MY OWN - this wouldn't have been possible before. I stayed with the lovely Charlotte Hogg for 3 nights and spent my last night with the fabulous Emily.
• I met some amazing people in London - catching up with my mentor Oli Barrett as well. I have started making plans for Donor Day 2010 and will fill you in when I can.
• It was Jess' 21st Birthday the day I was staying with Emily... we released blue and white 21st birthday balloons with Sunflower seeds attached to them (this is what me and Em threw on Jess' beautiful pink coffin at her funeral) we also attached a note to ask the person who finds them to plant them in her memory.
• I went to see Peter Kay at one of his intimate gigs for Haiti. He was hilarious!
• I am loving my new trustee role for Live Life Then Give Life
• Work is going well and I am getting my head around all the paper work!
• I am in the spring special of Pick Me up, talking about the gift of life campaign and battlefront!
• I jumped off the Royal Liverpool Hospital for the big zip in aid of the Linda McCartney Unit and the St Pauls eye unit. I hated jumping off the ledge but loved the actual zip wire and would definately do it again!
• I've booked to go and see Lady GaGa in June :)
• I can't remember if I mentioned this in one of my previous blogs but I am thinking of moving out of home (mum still thinks I am joking) but I am not and I want to make it happen in the coming months. (I will have to take some overtime on at work but I am sure it will be worth it)
• Rachy is doing well after her double lung transplant and I hope to see her when I get back off my holiday!

On Wednesday I am off to Ireland for a family wedding! The last time I went over for a wedding (2 years ago) I was on dialysis, had to fit the wedding in around this, obviously couldn't eat or drink what I wanted and felt nausious the hole time. My Mum had to pull the car over for me to be sick on the way home from the reception! So this year, it will be all different, I will be eating and drinking and no doubt showing the dance floor some of my moves!

Sorry that this was so brief. I will update more about that when I get back... I will hopefully do a photoblog sometime soon with pics of some of the above events.

Rachy got the call...

Just a quick update to say my friend Rachael Wakefield got her call for a double lung transplant today :) I got a text at 4.20am this morning and have been on tenterhooks all day waiting on any news, constantly checking my phone, facebook, blogs and twitter! Finally the news came through at 5pm that it was all a go and she was off to theatre!

I am so thrilled for her and her family, she really does deserve this second chance. Rachy had recently been put on the urgent transplant waiting list and I was extremely worried about her as it brought back so many memories of Jess! Of course Rachy is not out of the woods, she has got a long operation ahead of her and an even longer recovery. She is one tough cookie though, and I know she can do it!

She has promised to take me to TGI Fridays and I have promised her a night of cocktails, she best keep her end of the bargain, cos I will definately be keeping mine! Keep up to date with Rachy's progress here and of course on her own blog here.

I am of course thinking of the amazing family who said yes to Organ Donation at such a devestating time for them. You could do something amazing today and save someones life... sign the Organ Donor Register and give people like Rachy a chance. Thank you x

I am now a Trustee!

I am now a Trustee for Live Life Then Give Life! Woop!

I am mega excited about this, I have been doing stuff for them since 2006/7 and officially became an advocate for them in 2008 so I am really chuffed that they want me on board as a trustee! The AWARD WINNING team is great and I am looking forward to getting to know them better and working with them more in the coming months.

All the trustees have been affected by transplantation/organ donation in one way or another and so can put their personal experiences out there to help others. You can read more about them here. I am well aware of the charities aims and work but I am looking forward to getting more hands on in organising events, Stands, talks etc. I hope I can make a small mark on Live Life Then Give Life and maybe even a small mark on the world of Organ Donation through my role as trustee for this fantastic charity!

So a few places to point you to... obviously the Live Life Then Give Life website
The Live Life Then Give Life Forum - Intoto
The Live Life Then Give Life Blog

Thats it for now, will keep you updated on how its all going, and again, I can't actually believe how lucky I am to be doing all these things. My job and now the trustee role in LLTGL... 2010 is starting to look up... and more news on that in my next blog ;) I'll keep you in suspenders (oops I mean suspense) until then.....

Rough week...

Just a quick update to say that I'm still alive!

Blogging has taken a back seat while I started work and got settled in, I promise to keep it more up to date when I can. I am liking it at the nursery but have seemed to have picked up a bug from some of the snotty children! I got sent home from work on Tuesday afternoon but had been feeling ill for almost a week before that! I went to my GP on Thursday (I changed my working day to the Friday thankfully) he didn't seem too concerned and gave me some anti-biotics and said take them if I need them and sent me to Warrington Hospital for bloods. I thought I would be ok but got the prescription anyway, I went to work on the Friday (7.30am start!) and felt really ill but was determined to get through the day... I started the anti-biotics at lunch time and today I still feel really ill, achy, cough, going hot and cold and I have no voice! I had to cancel plans with friends today which really annoyed me and reminded me of how I used to have to do this when I was on dialysis!

Anyway I am due at The Royal hospital tomorrow for Bloods and I may pop up to the renal ward if I am still feeling bad to see if I can see a Doc. I feel stupid for moaning about this when there are so many people out there that are so much worse off than me, including Rachael Wakefield... please pop over to the Live Life Then Give Life Ambassoders blog. Rachy is having a really tough time at the minute and has been told that without a transplant soon, she doesn't have long left to live. This pails all my problems into insignificance so ignore my ramblings above, read this blog about this inspirational young lady and then sign the Organ Donor Register if you haven't done so already.

Rachy's story and others like her spur me on to keep campaigning, I appeared in my local paper again talking about the Manchester Roadshow that Rachy, I and others attended to encourage people to sign the register. You can read this here. A few of us appeared on BBC North West as well which was immensly nervewracking but I was really pleased with the final edit.

When I read Rachy's blog, see her posts on facebook and watch her piece from BBC North West, memories of Jess come flooding back. I don't want to lose another friend just because people haven't got round to saying yes to Organ Donation.

A new Chapter...

The journey of a thousand miles begins with one step.

Well I started my new job, for Kids Unlimited...

I think I'm really going to like it, I'm getting to know the routine, the kids and staff. I'm working Tuesdays and Thursdays, both 10 hour days which is tiring, but I'll get used to it. I am in the pre-school room so will be helping to care for/educate 3 and 4 year olds. I need to learn the paperwork routine but have already planned one activity, recorded it and will need to follow it up again with my key children in a few weeks. I am a key person for 6 children, my responsibilities include liaising with their parents and keeping their files up to date amongst other things.

I have some knowledge of the Early Years Foundation Stage but need to swot up a bit more, I need to be imaginative with my planning so will need to get my thinking cap on and create some fun activities for the kids to get stuck into. Its strange that I have all the knowledge from my assignments and lectures at uni but not much hands on experience but I'm sure it won't take me long to get the hang of things.

I've had a busy few days, as well as the job, but I will update about that in a separate blog. Before my transplant I used to find it hard to blog about things, as my life was not "normal" it revolved around hospitals, diets, needles, medication, clinics and now there's not enough time in my day to sit down and write about all the things I have done, places I have been and people I have met!

I still can't believe I'm not a student and actually have a job. Of course none of this would have been possible with out the generosity of my donor and their family, and I hope that I make them proud in my new venture.